We believe in extending the lives of those with rare diseases. We believe in improving the quality of living for those with rare diseases. We provide support to and advocate for those with rare diseases. Please join me in our efforts.
One in ten Americans has a Rare disease. Odds are you love someone who is Rare. I love someone who is Rare. Our three-year-old son Hunter Davis was diagnosed with SMA Type 1 at eight weeks of age. SMA is the second most common Rare disease, and it is the leading genetic cause of death for babies and toddlers under the age of two. I also love a couple other Rare individuals. Our family member Jenny Davis was diagnosed with Parkinson’s Disease in 2007. My dear friend Christie Jo Klump has Multiple Sclerosis.
Global Genes and the Gwendolyn Strong Foundation have partnered once again to offer the “I love someone RARE and beautiful” tee to support those with Rare diseases, and celebrate Rare Disease Day. The tee is a tribute to those with Rare diseases, and 100% of the proceeds go to Global Genes and the Gwendolyn Strong Foundation to further their efforts in supporting the Rare disease cause. Join the effort in supporting those with Rare diseases, and order your limited edition tee by clicking the above picture.
I purchased an “I love someone RARE and beautiful” tee from the Gwendolyn Strong Foundation to celebrate Rare Disease Day, and help support the Rare disease cause. For a chance to win the tee, comment that you love someone rare, together with their name, and their Rare disease. On March 3rd, a winner will be selected from the comments. The winner can proudly wear the tee throughout the end of March. Global Genes has declared February 28th through March 31st as Rare Disease Month, “Because Rare Disease deserves more than just a day!”
Do you ever stop to think about the value in things that are rare? Rare baseball cards have sold for over a million dollars. Rare comic books sell for hundreds of thousands of dollars. Rare gemstones can sell for millions of dollars. Rare collectors search for rare stamps, coins and books to complete their collections. What is the value of a life for someone with a Rare disease? I don’t think there’s any doubt that each and every Rare life is priceless.
Rare diseases are often misconceived as rare in their entirety. However, with one in ten American’s afflicted with a Rare disease, this is not true. While individual Rare diseases are rare, cumulatively they are very common. There are approximately 30 million individuals with Rare diseases in the United States alone. Sadly, nearly half of those affected by Rare diseases are children. I invite you to join in and help those with Rare diseases. Spread awareness, raise funds for research, or advocate for those with Rare diseases, and you will make a difference for the someone Rare you love.